Thursday, April 24, 2014

We Are 1 in 8 {National Infertility Awareness Week}

I have to be honest here, and tell you that this is a very hard post for me to write.  I have started and erased it half a dozen times.  I don't know where to begin.  I don't know what to say.  I don't want to make you guys uncomfortable since this is not a very talked about topic.  But I do want you to know and be aware that infertility is a very real diagnosis that affects us and those around us.  I apologize ahead of time if what I say here causes any offense.  I am just going to be totally honest and share what we have been through.  And hopefully it can help you understand us and maybe if you have other friends struggling with infertility, you can have a little insight on what to say or not to say.  Or just how to act around them.  I can tell it is hard for other people to know what to say around me when the baby subject comes up.  And I totally understand that all comments & questions are not meant to be hurtful.  So my prayer is that this post will come across in a positive way and that you might gain some infertility knowledge when you are done reading.


It is National Infertility Awareness Week and statistics show that 1 in 8 couples struggle with infertility.  Infertility just means that they have been trying unsuccessfully for 1 year.  So here is a little bit about our story.
In 2010 I was diagnosed with Premature Ovarian Insufficiency.  This is a problem with my body's inability to manage hormones correctly.  It is likely auto-immune related.  If anyone remembers when I was growing up I got the hives for 365 consecutive days and the only thing that would make them go away was a drug that shut my immune system down, this would make sense. I was referred to a RE (reproductive Endocrinologist) and tried unsuccessfully to get my body to respond to high doses of hormones.  We have a 5-10% chance of conceiving naturally, according to medical statistics.  But we know God does not care what the statistics are.  We were told our only options were adoption or using an egg donor and that when we decided what we wanted to do, to come back.  The emotions started rolling in at this point.  I believe I bawled all the way home.  I felt like we were given a terminal illness diagnosis.  I mean, how could someone that comes from such a big family have fertility problems?  Why us?  It's not fair!  What did I ever do to deserve this?  We are a Christian family, God should bless us with children.  It was like I felt like we deserved to have a family and others didn't.  Thankfully, God has brought me a long ways since that point in my life.

There are a lot of adoption options out there, which means a lot of dishonest/shady agencies as well.  To go through the adoption process with a reliable well known agency in the US is anywhere from $20,000 to $30,000.  International adoption is about 2 times that.  Using an egg donor is anywhere form $15,000- $20,000.  So not much cheaper.  We decided we were going to have to wait on starting a family.  We also prayed and talked about it, and decided egg donor was not right for us.
In the meantime, we heard about Embryo Adoption.  We are in the process of doing lots of research and praying to see if this is the right option for us.  We are willing to follow wherever God directs us.  Please pray for us.
Now, I would just like to share a few things not to say to someone struggling with infertility.  I will just give you a heads up that I have said most of these things before I knew what they really meant,  So, please, don't feel bad if you are guilty of any of these.  Just learn from it and move forward.

1. "You could always just adopt."  And so could you.  It's not that easy.  You don't just fill out some paperwork and they hand you a beautiful healthy baby.  Adoption is hard.  It is heart wrenching.  It is life changing.  It is not easy.  It is not a smooth process.  It takes lots of money.  It takes lots of faith.  And if this is in God's plan for you, He will definitely help you through it.  But you can't "just adopt".

2. "Just relax.  If you stop thinking about it, it will happen."  Really?  This is a medical diagnosis.  Not a mental block.  If this were the case, I would take a vacation and come back pregnant.

3. "You have time." or "You're still young."  I am well aware of my age.  5 years has already passed since we started this journey.  Then what?  Another 5?  Then another?  My 5-10% chance goes down every year that my age goes up.  It will only get harder.  Then if you want to have more than 2 kids and not be 60 when they graduate high school.  You kind of have to take that into consideration.

4.  "I wish I had that problem.  My husband just looks at me and I get pregnant."  Yes.  I have heard this one.  Just don't.

5.  "You're lucky you don't have kids.  You can just go whenever you want."  Again, just don't.  We know our lives would change should we be blessed with kids someday.  We know we would have to watch our finances closer.  We know it would take longer to get anywhere or to do anything.  We know they are messy.  We know they are loud.  We know this.  Please don't make your blessings sound like a curse.

6.  "Maybe you're not meant to be parents."  This one really hurts.  A lot.  If this were true, why are there abusive parents out there that have children?  Are they meant to be parents?  Teenage moms & dads.  Are they meant to be parents?  No one knows but God why bad things happen to good people.  We truly believe that our struggle has a reason and when we are able to hold our baby in our arms someday, we will know why.

7.  "You can be a mother to your friends kids, or nieces and nephews."   I would rather just be their aunt or friend.  Not a 2nd mom.  It hurts when people assume that since we don't have our own kids, that when we all get together we enjoy being at the kids table.  That we would rather be in the corner babysitting your kids while you laugh and have conversations with other adults.  We love your kids dearly, we would just prefer to parent our own.

8.  "It could be worse."  This is "worse" for me.  I have dreamed of having a family since I was a little girl.  This is like saying, "It could be worse.  Both of your parents could have died in the car accident."  What is worse for you is not what is worse for me and vice versa.  So please just refrain from saying that.


Now here are some ideas of things you can say or ways you can help.

1.  Text, call, message, write.  Just a simple note of encouragement is nice.  We like to know that you recognize our struggle and that it is not awkward to talk to us about this subject.  Just a simple "We're praying for you" is nice.

2.  Plan a kid free evening.  This may sound rather selfish, but sometimes we just need to feel that we aren't the odd ducks in the room.  And maybe the conversation doesn't have to revolve around kids, sleeping patterns, Carter's sales, and discipline so much.

3. Support our decisions.  Whatever they may be.  Whether we decide to do embryo adoption or domestic adoption, please let us know you support us and that you pray for God's will to be done in our lives.  You can ask me how things are going.  I really don't mind talking about it if I know you are interested in listening.  There may be some tears, but that's okay.  I need to know you care.

4.  Encourage us on Mother's Day/Father's Day  This might seem hard for you to do.  It may seem awkward.  But it means so much to us!  Just a simple "We said an extra prayer for you on this special day" is nice.

5.  Be patient.  I have been on an emotional roller coaster for 5 years now.  Sometimes I may seem distant.  Sometimes I may be sad.  Please try to understand.  I wish this wasn't how I was.  I am working through these emotions a little at a time and I really do think it is getting better.  But I still have my days.  I probably always will.  It's not something I can just bury and move on.  So, please, be patient with me.

6.  Become informed.  If you don't know, ask.  I am more than willing to share what I have learned through all of this.  I would like to encourage anyone that wants to become informed to read Hannah's Hope.  This book was loaned to me by a friend who also struggles with infertility.  There are so many positive things in there about how family and friends can help that I believe would be beneficial.


^^^This is so true.






I hope this post doesn't make you feel like you need to walk on egg shells around me.  I was trying to do the exact opposite.  Now that I feel like I have put this all out in the open, maybe it will help in the healing process.  Thanks for reading and don't hesitate to talk to me if you want more information or me to clarify anything I said!






17 comments:

  1. Thank you for your courage in sharing your journey. I hope you receive all of the support and encouragement you need!

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  2. Krystal,
    What a wonderful post and a wonderful journey you've set out on. I've never been in your shoes but have heard really wonderful things about embryo adoption. Plus there are children here in the U.S. that could use your tender loving care. God has a wonderful plan for you two. praying

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  3. Jacob and Krystal,
    I've enjoyed reading your posts over the last few months. I like all your creative posts, but I know there are parts of your life that is so hard. Thanks for sharing your heartache. I really think it does help and heal us slowly when we talk about our infertility. I have also read Hannah's Hope. I thought it was a very encouraging book. We are praying for you as God leads you in your journey.
    Jason and Kelsey

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    1. Thank you! We think and pray for you guys often as well! It has definitely helped in my healing process to be open about our infertility. May you feel His nearness throughout your journey too!

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  4. Love this post. Exactly what I would say :) Praying for you guys to just be in God's will and blessed with a child one way or another. Lots of love- Kara

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    1. Thank you Kara! We pray for you often! Thanks for helping me through some of my emotions and just being there to talk to. I appreciate it so much!

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  5. I think it helps so much to be open Krystal just like you did and the words you said, that was great! It helps people know how to react and what to say when they know your story! Prayers from this-a-way! -Miranda

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    1. Thanks Miranda! You need to come visit again soon!

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  6. I went on line over a year ago & researched what to say & not to say to people with this situation. I had to apologize to my daughter for probably saying the wrong things at times. I am definitely more aware now. A lot of things you posted is what many others felt. You're in our prayers as we have seen with our own eyes how this can affect a person. - Mary L.

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    1. Thanks Mary! I'm sure as a mom watching your daughter go through this struggle is really hard as well. I know it is for my mom. Prayer means so much to us!

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  7. thanks for sharing your feelings my sweet Krystal ! I love and pray for you and Jacob...Aunt Pat

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    1. Thanks Aunt Pat. We appreciate all the support! Love you!

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  8. I have tears in my eyes as I read your story and the comments of others who have the same struggle. Apologies to all if we have ever unknowingly said hurtful things in our ignorance, despite the fact that we really do just care. We will be prayerful for you in where God leads you and will rejoice or grieve with you as circumstances may unfold. I have used your situation to compare with a disappointment in our life that has absolutely nothing to do with infertility but the emotional impact is similar. Praying this family member of mine can try and see it as God's will and to trust, even when we don't understand. Thanks for the do's and don'ts in conversation. God sends the rain on the just and the unjust and it does not seem fair to us, I know. So appreciate your sharing, and a big, caring hug to you both! Our love, Beth and Kent

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    1. Thank you! I will say a prayer for your family member. Sometimes it is so hard to see the bigger picture and know God has something better planned for us. His plan is perfect!

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  9. I know this is very late because I just started reading your blog, but this post is spot on. My feelings exactly! Prayers!

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